Links & Glossary

Patients' Associations

• Association of European Cancer Leagues
  The vision of Association of European Cancer Leagues is to be a visible and effective player in cancer control and cancer care, in particular in Europe. The Patient Support Working Group (PSWG) is one of the most important areas of work for ECL. It is led by Dr Anne Nissen of the Danish Cancer Society, and supported by Board Member Joan Kelly of the Irish Cancer Society.
• European Cancer Patient Coalition
  Established in 2003, The European Cancer Patient Coalition is the voice of the European cancer patient community, uniquely representing the interests of all cancer patient groups from the major to the rarer cancers. It has been established to represent the views of cancer patients in the European healthcare debate and to provide a forum for European cancer patients to exchange information and share best practice experiences.
• IAPO
  IAPO is a unique global alliance representing patients of all nationalities across all disease areas and promoting patient-centered healthcare around the world.
• European Prostate Cancer Coalition (EUomo)
  The European Prostate Cancer Coalition (EUomo) is the umbrella organization of prostate patient organizations in Europe. As an umbrella organization Europa Uomo has no patients as members. EUomo serves all European patients on an international level to further the case of prostate health.
• European Patients' Forum (EPF)
  The European Patients’ Forum (EPF) is the umbrella organisation of pan-European patient organisations and national platforms of patient groups active in the field of European public health and health advocacy.
• International Confederation of Childhood Cancer Parents Organisations (ICCCPO)
  The International Confederation of Childhood Cancer Parent Organisations (ICCCPO) was founded in 1994. It promotes greater awareness and understanding of the issues and effects of childhood cancer at an international level.
• Myeloma Euronet (ME)
  Myeloma Euronet (ME) was founded in 2005. It is a European organization of patient groups dedicated to raising awareness of myeloma, a bone-marrow cancer. ME advocates for myeloma patients and provides information and support for patients and their relatives.
• European Myeloma Platform (EMP)
  The European Myeloma Platform (EMP) was founded in 2006, and is a European umbrella organisation of multiple-myeloma (MM) patient support groups that are active in the fields of European public health, health advocacy and the dissemination of information on MM.
• Europa Donna
  EUROPA DONNA (ED), the European Breast Cancer Coalition, is an independent non-profit organization whose members are affiliated groups from countries throughout Europe. The Coalition works to raise awareness of breast cancer and to mobilize the support of European women in pressing for improved breast cancer education, appropriate screening, optimal treatment and increased funding for research. ED represents the interests of European women regarding breast cancer to local and national authorities as well as to institutions of the EU.
• SARCOMA PATIENTS EURO NET
  Founded on April 6, 2009, at Bad Nauheim in Germany, SARCOMA PATIENTS EURO NET (SPAEN) is a European associative coalition that federates all associations interested in GIST and sarcomas in Europe